There are a number of Lichen Sclerosus email lists:

• LichenSclerosis.  Join this list to speak with other sufferers about problems, treatments, and other LS concerns.
• LSadmin.  This list discusses ways to increase the medical community's (as well as the public's) awareness of this condition.
• LSMale.  Although males are welcome to join any of the above lists, this list is a forum for male sufferers to discuss their own LS-related problems and concerns.  Note:  In men, LS sometimes goes by the name balanitis xerotica obliterans, or BXO.
• NLSSGchildren.  This list provides support for parents of children with LS.

• LS_CANADA.  A Canadian list.
• AustralasiaLSsupport.  A list for Australasian sufferers.
• LSwomen and NLSSGmen.  Lists based in the United Kingdom (UK), but with an international membership.

Once your application to join one of these email lists has been approved (this may take a day or two), you will automatically start receiving email from the other members of the list.  The LichenSclerosis list is fairly high-volume, so -- unless you check your email daily -- you should consider subscribing to this list in "Digest" format (i.e., each day's messages listed in a single email).

Information about LS can also be obtained by mail from the Lichen Sclerosus Information and Support Network:

LS Information & Support Network
PO Box 6762
Bloomington, IN 47407

Outside the US, the United Kingdom has its own National Support Group for LS.
 

The following newsgroups may also provide useful contacts:

• alt.support.skin-diseases
• alt.support.menopause
• alt.circumcision

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